Please use this identifier to cite or link to this item: https://hdl.handle.net/10356/142243
Title: Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers
Authors: Au, Shu Ting
Soong, Aijia
Kyaw, Bhone Myint
Tudor Car, Lorainne
Keywords: Science::Medicine
Issue Date: 2019
Source: Au, S. T., Soong, A., Kyaw, B. M., & Tudor Car, L. (2019). Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers. BMJ Open, 9(12), e028324-. doi:10.1136/bmjopen-2018-028324
Journal: BMJ Open
Abstract: Background: Dementia is a debilitating disease that can lead to major changes in a patient’s behaviour and function. It is important to educate both patients with dementia and their non-professional caregivers about the disease. Yet, currently available sources do not seem to be effective for patients and caregivers, who report a need for more information and guidance. A systematic identification of the patients’ and caregivers’ needs for information and information-seeking behaviour is needed to create information resources that are relevant and beneficial to the target population. Objectives: This is a protocol for a scoping review aimed at gathering knowledge on the information needs and information-seeking behaviour of patients with dementia and their non-professional caregivers. Our aim was also to provide recommendations for development of future dementia information resources. Methods: The study will commence in November 2018. Both quantitative and qualitative studies on the information needs of patients with dementia or caregivers will be examined using Arksey and O’Malley’s methodological framework for scoping studies. A comprehensive literature search will be conducted in electronic databases and grey literature sources. We will also screen reference lists of included studies and related systematic reviews for additional eligible studies. Two authors will perform screening of citations for eligibility and independently extract data from the included studies in parallel. Any discrepancies will be resolved through discussion. The findings will be presented through a narrative synthesis and reported in line with Preferred Reporting Items for Systematic Reviews and Meta-Analyses reporting guidelines. Ethics and dissemination: In this review, all included data will originate from published literature. Ethics approval is therefore not a requirement. We will present our findings at relevant conferences and will submit them for publication in peer-reviewed journals.
URI: https://hdl.handle.net/10356/142243
ISSN: 2044-6055
DOI: 10.1136/bmjopen-2018-028324
Rights: © 2019 Author(s) (or their employer(s)). Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
Fulltext Permission: open
Fulltext Availability: With Fulltext
Appears in Collections:LKCMedicine Journal Articles

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