Please use this identifier to cite or link to this item: https://hdl.handle.net/10356/153902
Title: Experience and perceptions of a family health history risk assessment tool among multi-ethnic asian breast cancer patients
Authors: Yoon, Sungwon
Goh, Hendra
Fung, Si Ming
Tang, Shihui
Matchar, David
Ginsburg, Geoffrey S
Orlando, Lori A.
Ngeow, Joanne Yuen Yie
Wu, Rebekah Ryanne
Keywords: Science::Medicine
Issue Date: 2021
Source: Yoon, S., Goh, H., Fung, S. M., Tang, S., Matchar, D., Ginsburg, G. S., Orlando, L. A., Ngeow, J. Y. Y. & Wu, R. R. (2021). Experience and perceptions of a family health history risk assessment tool among multi-ethnic asian breast cancer patients. Journal of Personalized Medicine, 11(10), 1046-. https://dx.doi.org/10.3390/jpm11101046
Project: Duke/Duke-NUS/RECA(Pilot)/2017/0033
Journal: Journal of Personalized Medicine
Abstract: A family health history-based risk assessment is particularly valuable for guiding cancer screening and treatment strategies, yet an optimal implementation depends upon end-users' values and needs. This is not only true prior to disease development, but also for those already affected. The aim of this study is to explore perceptions of the value of knowing one's family health history (FHH)-based risk, experience using a patient-facing FHH tool and the potential of the tool for wider implementation. Twenty multi-ethnic Asian patients undergoing breast cancer treatment in Singapore completed an FHH-based risk assessment. Semi-structured one-on-one interviews were conducted and data were thematically analyzed. All participants were female and slightly more than half were Chinese. The acceptance and usage of an FHH risk assessment tool for cancers and its broader implementation was affected by a perceived importance of personal control over early detection, patient concerns of anxiety for themselves and their families due to risk results, concerns for genetic discrimination, adequacy of follow-up care plans and Asian cultural beliefs toward disease and dying. This study uniquely sheds light on the factors affecting Asian breast cancer patients' perceptions about undergoing an FHH-based risk assessment, which should inform steps for a broader implementation in Asian healthcare systems.
URI: https://hdl.handle.net/10356/153902
ISSN: 2075-4426
DOI: 10.3390/jpm11101046
Rights: © 2021 The Author(s). Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Fulltext Permission: open
Fulltext Availability: With Fulltext
Appears in Collections:LKCMedicine Journal Articles

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