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Title: State of advance care planning research : a descriptive overview of systematic reviews
Authors: Jimenez, Geronimo
Tan, Woan Shin
Virk, Amrit K.
Low, Chan Kee
Car, Josip
Ho, Andy Hau Yan
Keywords: Advance Care Planning
Palliative Care
Issue Date: 2019
Source: Jimenez, G., Tan, W. S., Virk, A. K., Low, C. K., Car, J., & Ho, A. H. Y. (2019). State of advance care planning research : a descriptive overview of systematic reviews. Palliative and Supportive Care, 17(2), 234-244. doi:10.1017/S1478951518000500
Series/Report no.: Palliative and Supportive Care
Abstract: Objective. To provide an overview of the current state of research of advance care planning (ACP), highlighting most studied topics, publication time, quality of studies and reported outcomes, and to identify gaps to improve ACP receptivity, utilization, implementation, and outcomes. Method. Cochrane methodology for conducting overviews of systematic reviews. Study quality was assessed using a modified version of the Assessing the Methodological Quality of Systematic Reviews tool. The following databases were searched from inception to April 2017: MEDLINE, EBM Reviews, Cochrane Reviews, CINAHL, Global Health, PsycINFO, and EMBASE. Searches were supplemented with gray literature and manual searches. Result. Eighty systematic reviews, covering 1,662 single articles, show that ACP-related research focuses on nine main topics: (1) ACP as part of end-of-life or palliative care interventions, (2) care decision-making; (3) communication strategies; (4) factors influencing ACP implementation; (5) ACP for specific patient groups, (6) ACP effectiveness; (7) ACP experiences; (8) ACP cost; and (9) ACP outcome measures. The majority of this research was published since 2014, its quality ranges from moderate to low, and reports on documentation, concordance, preferences, and resource utilization outcomes. Significance of results. Despite the surge of ACP research, there are major knowledge gaps about ACP initiation, timeliness, optimal content, and impact because of the low quality and fragmentation of the available evidence. Research has mostly focused on discrete aspects within ACP instead of using a holistic evaluative approach that takes into account its intricate working mechanisms, the effects of systems and contexts, and the impacts on multilevel stakeholders. Higher quality studies and innovative interventions are needed to develop effective ACP programs and address research gaps.
ISSN: 1478-9515
DOI: 10.1017/S1478951518000500
Schools: School of Social Sciences 
Interdisciplinary Graduate School (IGS) 
Lee Kong Chian School of Medicine (LKCMedicine) 
Rights: © 2019 Cambridge University Press (CUP). All rights reserved. This paper was published in Palliative and Supportive Care and is made available with permission of Cambridge University Press (CUP).
Fulltext Permission: open
Fulltext Availability: With Fulltext
Appears in Collections:IGS Journal Articles
LKCMedicine Journal Articles
SSS Journal Articles

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